We bought necklace urns so we can always have a small part of our son with us wherever we are....close to us. Our boys wanted to get a way this weekend & it's breaking my heart that Caleb cannot be here laughing with us. But I know he will be watching and playing right along with his brothers from Heaven. And I have a lil' part of him to hold when the tears just don't want to stop falling. Pastor Mike also said a Blessing over our necklaces last night. Oh, I almost forgot...when we pulled into the parking lot of the hotel tonight it started to sprinkle..it has been clear and dry all week. My lil' one must've been saying hi :) Goodnight sweetness....I'll meet you in my dreams....love you.
I've never heard of or seen these kinds of necklaces, I'd like to see them up close. I love you guys, know that you are in my thoughts and prayers. If you need me, call me.
Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.
We bought necklace urns so we can always have a small part of our son with us wherever we are....close to us. Our boys wanted to get a way this weekend & it's breaking my heart that Caleb cannot be here laughing with us. But I know he will be watching and playing right along with his brothers from Heaven. And I have a lil' part of him to hold when the tears just don't want to stop falling. Pastor Mike also said a Blessing over our necklaces last night. Oh, I almost forgot...when we pulled into the parking lot of the hotel tonight it started to sprinkle..it has been clear and dry all week. My lil' one must've been saying hi :) Goodnight sweetness....I'll meet you in my dreams....love you.
I've never heard of or seen these kinds of necklaces, I'd like to see them up close. I love you guys, know that you are in my thoughts and prayers. If you need me, call me.
ReplyDeleteThose are so BEAUTIFUL, Jeanette! What a sweet, lovely idea. I know it gives you some comfort to have that around your neck all the time.
ReplyDeleteI think of Caleb every day and when I see him in my mind, I always see that Sassy Smile on his face. What a wonderful way to be remembered.
XOXOXO Pam