Caleb had been in the hospital for 9 days because he had a severe UTI. He had also been having pain, vomitting & diarhea for about 1 month with no explanation why. He wasn't tolerating his feeds and his GI Dr. felt it was best to admit him to be evaluated. That is when they found the UTI & kidney pyelonephritis. He went on two IV antibiotics. They also found during this stay kidney stones that were embeded in the meat of his kidneys. They switched his formula to see if he could tolerate it better. We were discharged with a follow up to see a Pediatric Urologist in Jacksonville.
When we got home he still wasn't tolerating his feeds well. I did a little bit of research on the different formulas he was on and called the manufacturers. Eventually we figured that Caleb probably has a intolerance to maltodextrine which is a corn carbohydrate. The only formula that doesn't contain this is Alimentum RTF. He has done well on it so far. After further testing of his kidneys, we found out that he has grade 4-5 reflux in his left kidney (which we've known for over a year), but also has grade 4 relux in his right kidney. This was so upsetting. His Urologist feels optomistic that we can handle it with the daily antibiotic but wants us to have a DMSA to see how his kidneys are. So far we have had kidney u/s, cat scans, DTPA, VCUG, and will be having a DMSA.