The Ocala Star Banner did another wonderful article on Caleb & our family. We appreciate them wanting to help educate people on Trisomy 18...and to put God and a personal story to it.
http://www.ocala.com/article/20101225/articles/101229835
http://www.ocala.com/article/20101225/articles/101229835
What a beautiful article about Caleb. I've read the last few entries, too. He is such a tough little guy. I love the doctor-paper video. Glad your Christmas was so merry and memorable. -- KTC
ReplyDeleteThank you Karen. I emailed you a while back but wasn't sure if you rec'd it. I was interested in the group you had mentioned. Please let me know how I can contact you. many Blessings and Happy New Year!
ReplyDeleteHello Caleb and family! We were so encouraged and inspired to read your story thanks to a friend who lives in Gainesville and brought it to us. I live in Jacksonville, (Orange Park,) and have a great niece, Lilly Hollowell who is a Trisomy 18 baby. Lilly was born on the 4th of July, 2010, in North Carolina and sent home the same day to die. The dreadful doctors in that tri-state research area refused to treat her in any way except as 'incompatible with life.' So I found her some wonderful, wonderful, U of Fl doctors right here at Wolfson's Children's hospital. They took Lilly in at 3 months old, 4lbs 7oz, (1 lb lower than her birth weight) and fattened her up to 5 lbs and loved her for 2 weeks before putting a pulmonary artery band on to keep the fluid away from her heart. She came through it with flying colors,proving to be the little firecracker that she was born to be and thanks to prayers from all over the world and doctors and nurses who are believers. She will have the hole in her heart repaired when she is 10 lbs or close to it back at Wolfson's. She has been back home in North Carolina since October on an NG feeding tube and is slowly but steadily gaining weight.
ReplyDeleteWe are so excited and thankful to know about Caleb's journey and to see his absolutely GORGEOUS face! Watching him laugh at the paper on the table brought tears to my eyes.
My niece, Lisa Hollowell, the mommy, will be contacting you soon as I sent her the article from the newspaper and Carie (Stinky's mom) gave her your blogspot and she gave it to me.
I hope you 2 families will have a chance to meet when they are back here for Lilly's surgery since you are so close. In fact, Lisa lived in Ocala for several years before Lilly was born.
I saw that Caleb has a Urologist in Jax. If you ever need a place to stay here, I have a whole upper story with enough bedrooms and bathrooms for your family and would be honored to have you. (We love these special babies!)
Please know that we will be following Caleb's blog and he will now be added to our prayers along with Lilly. As we know, God is in control and has plans for these babies.
I am on facebook. Pam Bowers
email pam@thebowersplace.com
and here is Lilly's blog
pray4lilly.blogspot.com
Lilly and Caleb look like they could be brother and sister.
God Bless you,
Pam