Caleb's Journey: I'm a big boy now, I'm learning to stand :)

Sunday, August 7, 2011

I'm a big boy now, I'm learning to stand :)

Caleb got his new stander and is doing really well in it. He seems to enjoy it and is interactive with what is going on around him. It brought me to tears just watching how well he was doing...achieving things that we never that he would. God you have blessed us beyond words...

5 comments:

G Michael RobinsonAugust 16, 2011 at 7:35 PM
Awww! Another milestone! Caleb's getting to be such a BIG boy! <3
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Smilen ChampAugust 20, 2011 at 6:01 PM
Hi
Caleb you are an amazing, wonderful precious, and special Earthly Angel. You are a Super Trooper, and a Tough Cookie. You are a brave warrior, smilen champ and an inspirational hero. U will be in my thoughts. I was born with a rare life threatening disease, and love it when people sign my guestbook. www.miraclechamp.webs.com
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Heather WAugust 30, 2011 at 5:53 AM
I am so sorry for the hurt that you are going through... He is an amazing little boy who I'm sure touched so many... Your family is in my thoughts and prayers... RIP Caleb...
Heather
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LinneaAugust 31, 2011 at 7:16 AM
Your family is in my thoughts and prayers. I am so sorry for your loss.

Blessings

Ashlee
http://ourjourneytoadoption.beckfamily143.com/
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G Michael RobinsonSeptember 8, 2011 at 11:35 PM
Jeannette, My heart aches for you and Steven. You and your family mean so much to me. You have so many people who care for you and are standing with you during this difficult time. <3

Love,
Michael
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Definition of Trisomy 18 (Edward's Syndrome)

Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.

Caleb's Journey

Sunday, August 7, 2011

I'm a big boy now, I'm learning to stand :)

5 comments:

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Definition of Trisomy 18 (Edward's Syndrome)

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