Caleb's Journey: August 2011

Tuesday, August 30, 2011

After celebrating his 29th month of life, Caleb dies at area hospital-News Article

http://www.ocala.com/article/20110830/ARTICLES/110839970

Sunday, August 7, 2011

I'm a big boy now, I'm learning to stand :)

Caleb got his new stander and is doing really well in it. He seems to enjoy it and is interactive with what is going on around him. It brought me to tears just watching how well he was doing...achieving things that we never that he would. God you have blessed us beyond words...

Monday, August 1, 2011

Lovin' the rain

Caleb loves to listen to the rain. When we are in the car he laughs as the rain starts hitting the window. He loves listening to it fall on the skylight...but most of all...he loves feeling it fall against his face. He reminds us to take a moment, put on our comfy pj's

& dance in the rain.

Definition of Trisomy 18 (Edward's Syndrome)

Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.

Caleb's Journey