Getting a massage

Caleb is getting his relaxing massage before bedtime. We are working on his heightened sensory issues...he's doing pretty well. He is still really sensitive but he is getting more use to different touches.

Being fitted for my new wheelchair/stroller

Such a BIG day! Our DME from Gainesville came to fit Caleb for his new Otto Bock-Kimba Stroller and adaptive seating. I cannot believe we are doing this! I never thought that this day would ever come. He is getting so big, he's even starting to get his big boy face :) Having this new stroller/seating will allow him to be more social with others and for him to see the world from a whole new perspective. It will be great for him to sit and watch his brothers play, for him to do his playtime and therapies. I can't wait to get it. Hopefully there won't be any insurance hiccups! With God anything is possible....

Sweet sixteen birthday!

Happy sweet 16, Caleb!! These toys use to belong to a beautiful little girl, Brianna. Her mommy wanted to share them with Caleb and gave them to him a while ago. He is finally able to enjoy them..he smiles & laughs at them....another milestone. God is so good...always.

Caleb & Daddy Being Silly

Nothing like the love of a child to make a grown man act like a big kid. Daddy was just making noises when he noticed Caleb laughing at one of the them. Don't know why it made him laugh but it was hysterical. Caleb fully interacts with us. He is such a happy baby. Never in our wildest dreams did we think we would be sharing moments like this. God has shown us once again his miracles in life. THANK HEAVEN FOR DADDIES!!

FOLLOW UP: I got the whole story...daddy was playing Battleship with our other son Devin. Devin sunk daddies ship..so of course daddy being the big kid that he is had to make the sound of the ship going down! Caleb thought that was hillarious!

After Starting Lasix

Just got back from Cardiology appointment. All I can say is THANK YOU GOD!! Caleb's liver has shrunk back down. The left side of his heart is no longer enlarged & the right side has started to shrink a bit. His pulmonary hypertension is slightly lower. The words came out of the dr's mouth "he may be a candidate for heart surgery". I about fell to the floor. The look on the dr's face was priceless, never seen him so happy. We are still not there yet. We need to know why Caleb is still needing o2 & what is going on with his obstructions. Last thing we want is for him to be stuck on a ventilator. I am thrilled beyond words. And the Doctor continues to be amazed...all in GOD'S HANDS

We have to watch to make sure his lungs are not getting damaged from the blood that is accumulating in them. There is a balance with the heart doing well and the lungs may not be. We will have to make decisions on surgery if things start to change. We always pray for guidance.

Perseverance- Caleb trying to pull himself up

Watching Caleb work so hard to try and pull himself up brings tears to my eyes. The smile he gets on his face from accomplishing such small tasks is heart warming. I sometimes let things in life bother me....but when I see Caleb with such determination , it makes everything else seem so unimportant. He puts life into perspective. Way to go my son..you are amazing..and we are so proud of you!

Our First Vacation

We got to make some wonderful memories, one's we can cherish a lifetime. It is scary to leave our comfort zone..afraid of the unknown. But we have to live and allow the boys to be children. They have had to grow up way too fast. It was great for us all to play & be kids again. And for Caleb to experience things I never thought he would. There are no words that can express how great this vacation was. How perfect it all was. God I'm sending you a great big hug..just wait til' we meet face to face :) I love our family, nomatter what the future holds, the here and now is breath taking.