Caleb's Journey: January 2012

Friday, January 13, 2012

Our Forever Valentine's

I will look for you in all of God's beautiful creations, when the trees blow, when it rains, in our butterfly garden, when we see a rainbow and in my dreams. I will wait until we can be together again for eternity...you will always be my forever Valentine. I redid Caleb's Valentine video to include both of the Valentine's that he spent with us.

Monday, January 9, 2012

A special visit from Joey 2012

Joey is getting so big. She reminds us so much of Caleb. Forever friendships brought together by the love of our beautiful lil' ones.

Thursday, January 5, 2012

Caleb' first Heavenly Valentine's Day

This is Caleb's 1st Heavenly Valentine's Day. We use to decorate a tree each holiday/season for Caleb..he loved lights. Now we decorate his special areas. Especially his Memorial place (it is a memory box & urn, the urn is in the bottom of the case. I love it because I can decorate it and make it extra special). He's always with us

Definition of Trisomy 18 (Edward's Syndrome)

Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.

Caleb's Journey