We got to make some wonderful memories, one's we can cherish a lifetime. It is scary to leave our comfort zone..afraid of the unknown. But we have to live and allow the boys to be children. They have had to grow up way too fast. It was great for us all to play & be kids again. And for Caleb to experience things I never thought he would. There are no words that can express how great this vacation was. How perfect it all was. God I'm sending you a great big hug..just wait til' we meet face to face :) I love our family, nomatter what the future holds, the here and now is breath taking.
Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.