Trisomy 18 Awareness by the Ocala Star Banner

Caleb's 2nd Birthday Celebration!

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Very Special People

Angela & Ashley (t21 - Down's Syndrome), Chontee & Brianna (deletion of the 7th chromosome - so rare there is no other name for it), Lisa & Joey (t18 - Edward's Syndrome), Julie & Taylor (t18 - Edward's Syndrome), Susan & Rebekah (t18 - Edward's Syndrome), Me & Caleb (t18 - Edward's Syndrome), Gilianny & Noah (t13 - Patau Syndrome - Noah was right next to Caleb in the NICU when they were born. Noah is one day older than Caleb)

We were so incredibly blessed to have these beautiful families there to celebrate in Caleb's special day. God has brought such amazing & loving mommies & daddies into our life. I thank God for them everyday.

Remembering Caleb's Angel Friends

We had a balloon release at Caleb's birthday party to remember all of his friends that have been called Home too soon. We know that they were all looking down and celebrating right along with us. It was a beautiful day. Always with us.....always loved.

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Caleb & Rebekah

My friend Susan and her daughter Rebekah came to visit us for Caleb's birthday party from SC. They arrived on Thursday night and was able to stay until Sunday....wish they could've stayed longer. It was so nice to have them here. We had fun chatting, playing & taking lots of pictures. Rebekah is 1 month younger than Caleb and has t18. She is just beautiful & she was mighty "friendly" with Caleb. I don't think he minded though.

Sleep Study 5

Having another sleep study since Caleb suddenly got off o2. We will decide if we need to reschedule his surgery for the removal of his adenoids. He had a lot of sleep apnea and we will see what it is like now. Caleb is being pretty sassy :) He is 21 months old and has full trisomy18

New Year's Eve!!!!

Quiet evening with family. It is not another year gone...
but another year earned.