Sweet sixteen birthday!

Happy sweet 16, Caleb!! These toys use to belong to a beautiful little girl, Brianna. Her mommy wanted to share them with Caleb and gave them to him a while ago. He is finally able to enjoy them..he smiles & laughs at them....another milestone. God is so good...always.

Caleb & Daddy Being Silly

Nothing like the love of a child to make a grown man act like a big kid. Daddy was just making noises when he noticed Caleb laughing at one of the them. Don't know why it made him laugh but it was hysterical. Caleb fully interacts with us. He is such a happy baby. Never in our wildest dreams did we think we would be sharing moments like this. God has shown us once again his miracles in life. THANK HEAVEN FOR DADDIES!!

FOLLOW UP: I got the whole story...daddy was playing Battleship with our other son Devin. Devin sunk daddies ship..so of course daddy being the big kid that he is had to make the sound of the ship going down! Caleb thought that was hillarious!

After Starting Lasix

Just got back from Cardiology appointment. All I can say is THANK YOU GOD!! Caleb's liver has shrunk back down. The left side of his heart is no longer enlarged & the right side has started to shrink a bit. His pulmonary hypertension is slightly lower. The words came out of the dr's mouth "he may be a candidate for heart surgery". I about fell to the floor. The look on the dr's face was priceless, never seen him so happy. We are still not there yet. We need to know why Caleb is still needing o2 & what is going on with his obstructions. Last thing we want is for him to be stuck on a ventilator. I am thrilled beyond words. And the Doctor continues to be amazed...all in GOD'S HANDS

We have to watch to make sure his lungs are not getting damaged from the blood that is accumulating in them. There is a balance with the heart doing well and the lungs may not be. We will have to make decisions on surgery if things start to change. We always pray for guidance.

Perseverance- Caleb trying to pull himself up

Watching Caleb work so hard to try and pull himself up brings tears to my eyes. The smile he gets on his face from accomplishing such small tasks is heart warming. I sometimes let things in life bother me....but when I see Caleb with such determination , it makes everything else seem so unimportant. He puts life into perspective. Way to go my son..you are amazing..and we are so proud of you!

Our First Vacation

We got to make some wonderful memories, one's we can cherish a lifetime. It is scary to leave our comfort zone..afraid of the unknown. But we have to live and allow the boys to be children. They have had to grow up way too fast. It was great for us all to play & be kids again. And for Caleb to experience things I never thought he would. There are no words that can express how great this vacation was. How perfect it all was. God I'm sending you a great big hug..just wait til' we meet face to face :) I love our family, nomatter what the future holds, the here and now is breath taking.

Celebration!

We had Caleb's 1st birthday party today at our church. It was amazing. There were so many people there to celebrate Caleb's miraculous life. Caleb was so cute in his little bow tie outfit. He knew he was the king of the party! We had a Noah's Ark bounce house for the older kids. We wanted Corey and Devin to not feel left out. They so often have to do without because our time is occupied caring for Caleb. They have been so loving and understanding. This party was for them to celebrate as well. Thank you God for Caleb and our wonderful family. We are blessed beyond words.

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Happy 1st Birthday!!!

What an amazing day..this time last year we were at the hospital waiting to see our precious baby boy..so uncertain of what was going to happen. We had family, friends and Pastor Mike waiting anxiously there with us. I remember being in the OR & all of a sudden hearing the most beautiful sound, Caleb's cry. Steven j...ust cried, looked at me & said "he's alive". He was so beautiful, so perfect. We were so anxious bc we kept wondering with each and every breath he took if it was going to be his last. But he fought with every bit of life he had. God has blessed us beyond words & today we are celebrating his miraculous first year of life. With God ANYTHING is possible. He has guided us & held us so tightly through this journey. He has brought so many wonderful people in our lives. I am so grateful to the other t18 families who we've gotten to know & love. Thank you to all our family & friends who have been right here with us..we love you all so very much. Happy Birthday my sweet Little Mouse