The appointment went well. There hasn't been any change. Which is a good thing. We would like it to be better but at least it isn't worse. I talked with his Cardiologist about how another t18 mommy had told me about how her little one's pulmonary hypertension had gotten better with having a bipap. He explained that it can get better if the ph isn't caused by lung disease. I asked if we knew that with Caleb. He said no but that it may be a good idea to have a scan of his lungs to see where the cause of the ph may be. If it isn't lung disease then there may be hope to correct some of it. Praying, praying, praying. The only problem is that we will not allow Caleb to go under sedation for any of these tests. It is too dangerous. So we need to see how creative we can get to get this done. He is weighing in at 11 lbs 8 oz!!
Two very wonderful people gave us a brand new crib for Caleb. They had wanted to do something for us when Caleb was born regarding baby furniture. Because we thought that Caleb would only be with us for a short while we decided to not get any furniture. He would stay in a bassinet that was just his size. Now that Caleb has amazed us all and is 6
months old, it is time to move up into a crib! What an awesome milestone. He loves his new sleeping arrangements. Thank you so much for the amazing gift. I love looking over at him sleeping, he's such a big boy. He's also surrended by pictures of all his little friends & angels.
